Healthcare professional resources

Here you will find a range of information and training tools for healthcare professionals. These are provided to give some additional guidance where required, or for those simply wanting to refresh their knowledge of coeliac disease.

 

NICE Guidance – NG20 Coeliac Disease Recognition, Assessment and Management

 

NICE Guidance sets the standards for high quality healthcare and encourages healthy living. The NICE Guidance on coeliac disease was first published in May 2009 and as revised in September 2015. Also included below is the NICE Guidance on Irritable Bowel Syndrome (IBS), which highlights the importance of excluding coeliac disease before diagnosing IBS.

 

NG20 Coeliac disease: recognition, assessment and management

CG61 Irritable bowel syndrome in adults: diagnosis and management of irritable bowel syndrome in primary care

 

British Society of Gastroenterology (BSG) – diagnosis and management of adult coeliac disease

 

The Clinical Services and Standards Committee of the BSG commissioned guidance on the diagnosis and management of coeliac disease after rigorous peer review of the literature, including data from any available randomised controlled trials, systematic reviews, meta-analyses, cohort studies, prospective and retrospective studies. The latest guidelines were published in 2014.

 

Ludvigsson, J.F., et al., Diagnosis and management of adult coeliac disease: guidelines from the British Society of Gastroenterology. Gut, 2014. 63(8): p. 1210-28.

 

British Society of Paediatric, Gastroenterology, Hepatology and Nutrition (BSPGHAN)

 

BSPGHAN in collaboration with Coeliac UK published joint guidance on the diagnosis and management of coeliac disease in children.

 

Murch, S., et al., Joint BSPGHAN and Coeliac UK guidelines for the diagnosis and management of coeliac disease in children. Arch Dis Child, 2013. 98(10): p. 806-11.

 

British Dietetic Association (BDA)

 

Coeliac UK has worked with the BDA to develop an online module titled ‘Coeliac disease, getting the diagnosis right’. The module reviews current evidence to support adults and children getting the right diagnosis and helps dietitians in considering individuals that may be in need of referral and screening for coeliac disease.

The module has audio content and takes approximately 15 minutes to complete.

Coeliac disease, getting the diagnosis right

 

Centre for Pharmacy Postgraduate Education (CPPE)

 

Coeliac UK has worked with the CPPE to develop an online ‘floor’ on coeliac disease, as a training tool for everyone working in the community pharmacy. The information available includes 11 ‘hotspots’ ranging from information on recognising coeliac disease to building a business case to bid for a local gluten-free food service, quizzes, videos, a case study and links to more materials to aid learning.

 

Coeliac disease: the learning pharmacy

 

Research papers

 

At Coeliac UK our policy positions and statements are underpinned by evidence based research. Here you can find a list of relevant publications:

 

It is estimated that 1 in 100 people are diagnosed with coeliac disease

Bingley, P.J., et al., Undiagnosed coeliac disease at age seven: population based prospective birth cohort study. BMJ, 2004. 328(7435): p. 322-3

 

Only 24% of people with coeliac disease are currently diagnosed

West, J., et al., Incidence and prevalence of celiac disease and dermatitis herpetiformis in the UK over two decades: population-based study. Am J Gastroenterol, 2014. 109(5): p. 757-68.

 

It takes an average 13 years from onset of symptoms until confirmed diagnosis with coeliac disease

Gray, A.M. and I.N. Papanicolas, Impact of symptoms on quality of life before and after diagnosis of coeliac disease: results from a UK population survey. BMC Health Serv Res, 2010. 10: p. 105.

 

Approximately one in four people diagnosed with coeliac disease were previously treated for Irritable Bowel Syndrome

Card, T.R., et al., An excess of prior irritable bowel syndrome diagnoses or treatments in Celiac disease: evidence of diagnostic delay. Scand J Gastroenterol, 2013. 48(7): p. 801-7.

 

 

If would like to know more about the research into coeliac disease, including the work commissioned by Coeliac UK, please go to the Coeliac UK website research pages.